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SSI MPN MODEL

Case studies

Alexandra

Alexandra

1/9

Alexandra is a Venezuelan-Australian mother of two – 17-year-old Daniela and 8-year-old Andrés with down syndrome.

Alexandra 2/9

Since giving birth to Andrés, Alexandra has been immersed in the disability space as she learnt about down syndrome and accessing support for her son. Alexandra was invited by a friend to participate in the MPN program with other Spanish-speaking mothers of children with disabilities in the local area.

Alexandra and the other mothers met for regular fortnightly meetings at a Rouse Hill shopping centre located 10 minutes from her house.

Alexandra 3/9

She appreciated the convenient location and timing which allowed her to manage parental commitments.

The informal meeting setting of café with a playground took the pressure away from Alexandra to arrange child care and served as a relaxed and safe space for sharing.

Alexandra found these regular meetings an opportunity for social support.

Alexandra 4/9

Having been involved previously in other support services, the highlight of the MPN program was the mutual cultural perspective amongst participants.

Alexandra felt she was able to connect strongly with the other mothers in the group who shared migrant and parenting experiences as her.

Alexandra 5/9

Alexandra recounts the ways that the information shared in the group enabled others to improve their self-advocacy skills.

Having been involved in the disability sector for over eight years, Alexandra saw it as an opportunity to share her experiences and knowledge with others. As they were navigating unfamiliar systems – medical, allied health, social, or educational – learning how to advocate for their children with disabilities and themselves was a crucial skill.

Alexandra 6/9

Alexandra was able to support other mothers in facing challenges through seeing self-advocacy as accessing rights as opposed to arguing or fighting.

Alexandra felt these casual meetings meant the mothers could come together to exchange experiences, opportunities, and struggles.

Alexandra 7/9

Alexandra developed friendships with other mothers in the group and was able to continue to meet with them outside of the group and working around their busy schedules.

As the group was held locally, Alexandra and the other mothers were able to arrange additional catch ups with ease.

Alexandra 8/9

“So I don’t have much free time in my life, but I can have an occasional Monday coffee with one of the other mums, and that’s great.”

“We just spent half an hour ranting, having a coffee, then get on with our day. And I feel so much better after…We need this informal support in our lives.”

Alexandra 9/9

These groups provided Alexandra with a social outlet which was invaluable in alleviating some of the stresses of navigating day-to-day life.

Participants